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A MyPsoriasisTeam Member asked a question 💭
Stirling, UK

Wondering if anyone else has had the experience of being diagnosed by one rumatologist with psoratic arthriatis and got started on methotrexate at only 7.5mg a week, when next seen 4 months later by a different doctor at the hospital he decided that it wasn't arthritis but fibromalgia and he stopped all my meds including pain killers and has referred me to psychiatric team as he says the pain is all in my head
Right mow I just want to curl up and die, I hardly sleep for the pain, have to use a… read more

July 24, 2016
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A MyPsoriasisTeam Member

The only disease harder to diagnose than psoriatic arthritis is fibro. I would go back to the rheumatologist and only a rheumatologist. Remember fibro does not cause the type of joint pain PsA does. Fibrok is a neurological nerve/muscle pain. You get muscle pain from PsA but with bad joint pain usually.

July 14, 2023
A MyPsoriasisTeam Member

Numerous People in my family have lupus,fibromyalgia, osteoarthritis, and psoriasis , including myself.
Both of my sons had bone surgery in their 20s.My father passed at 62 after having 16 back surgeries, due to degeneration. I have hurt so much and lost mobility the last 10 years. Wasting time to see many orthopedic doctors to have them just want to shoot up every part of my body with cortisone. Not one would listen to what I was telling them about the pain, and the aching all the time. They always would ask me if I had an injury , and I felt like all they were looking for was a way to keep me coming forever !!! I hat my share of PT. It wasn’t until the first surgery on my foot from bone spurs and a deteriorated joint with an infection inside, that I knew something had a change. Literally showed me to listen to the body more ! I stopped going to all of those, and went to a rheumatologist and it was the best thing I ever did in my life for my health. Since I was not aware of how difficult it is to diagnose psoriatic arthritis quickly, they teach me a lot , and explains everything to me in a manner that I can understand. When your body fights against itself, you just wanna figure out how to fix it. At least I do.
We have had to change medication‘s three or four times now, but I finally feel like I’m on a path of manageability as long as I don’t physically push myself as I did in the past, and can’t anymore. I have peace now, and have a plan for pain management that doesn’t include a bunch of narcotics. Again accepting what is , and trusting someone with knowledge on the subject is the key to success with any infirmity. I would never look for another rheumatologist because mine listens, and the whole office really cares about what we’re going through. When I am in a flare , my blood pressure always goes up from the pain, I generally stay in the 4 to 6 range, and they won’t even squeeze your arm to cause you any more discomfort. Listen to your gut, find your center, and fill your life with people that will support and not judge you.
Just take a good look around anywhere, and you’ll see plenty of ugly and critical. Despite what comes, because I know in the grand scheme of things I am not in control. Always stay humble and kind. Good will come to you. Wisdom is moving forward with what today has to give me and make it my best. I pray everyone finds the treatment, love, understanding, and help they need to bear the changes. Thank you for your time.

March 6, 2023
A MyPsoriasisTeam Member

I was lucky that I had a great orthopedic doc in MD who sent me to a rheumatologist when my knee replacements weren’t helping with my pain and my hands showed signs of bone erosion. A PET scan “lit up like a Christmas tree “ per my orthopedic doctor showing inflammation pretty much everywhere despite normal bloodwork. A neurologist told me my mobility issues was due to heavy thighs and my new rheumatology doc in FL told me he doesn’t manage fibromyalgia and he believes my hand issues and other joints are because of the osteo and not the PsA.
As a former healthcare worker I know it’s time to seek new docs. I know there are healthcare professionals who blow things off but there are also wonderful doctors who do have the great knowledge and care for their patients. So don’t give up. Keep looking for a a doctor who takes the time to honestly asses and provide care needed.

October 31, 2023
A MyPsoriasisTeam Member

@A MyPsoriasisTeam Member here certainly are tests for PsA, one is very simple, just see if your fingernails are lifting off the nail bed.

Psoriatic arthritis (PsA) is a type of inflammatory arthritis that affects some people with psoriasis, a skin condition. Diagnosing PsA can be complex, and healthcare professionals typically use a combination of clinical evaluation, medical history, and various tests to confirm the diagnosis and rule out other conditions. Here are some of the common tests and assessments used in the diagnosis of Psoriatic Arthritis:

Physical Examination: A healthcare provider will examine the patient's joints, skin, and nails. They will look for signs of inflammation, such as joint swelling, tenderness, or skin and nail changes often associated with PsA.

Medical History: The doctor will ask about the patient's personal and family medical history, including any history of psoriasis or other autoimmune conditions.

Psoriasis Assessment: A dermatologist may examine the skin and nails to determine if psoriasis is present and assess its severity.

X-rays: X-rays can help identify joint damage and changes in the bones and cartilage. Joint damage is often more pronounced in later stages of PsA.

MRI (Magnetic Resonance Imaging): MRI scans can provide detailed images of joint and soft tissue to help diagnose early joint involvement.

Blood Tests: Blood tests may include:

Rheumatoid Factor (RF): Although PsA is distinct from rheumatoid arthritis, some patients with PsA may have a positive RF.
Anti-cyclic citrullinated peptide (anti-CCP) antibodies: These are also found in some patients with PsA.
Erythrocyte Sedimentation Rate (ESR) and C-Reactive Protein (CRP): Elevated levels of ESR or CRP can indicate inflammation in the body.
HLA-B27: This genetic marker is associated with some forms of PsA.
Joint Aspiration (Synovial Fluid Analysis): In some cases, the doctor may use a needle to remove a small amount of fluid from an affected joint for analysis. This can help differentiate between PsA and other forms of arthritis.

Ultrasound: Ultrasound can provide real-time images of the joints, tendons, and surrounding structures, helping in the assessment of inflammation and damage.

The diagnosis of Psoriatic Arthritis is based on a combination of clinical and laboratory findings. The specific tests and assessments used may vary depending on the patient's symptoms and presentation. If you suspect you have PsA or have symptoms, it's crucial to consult with a healthcare professional for a thorough evaluation and diagnosis. Early diagnosis and treatment can help manage the condition and prevent joint damage.

October 25, 2023
A MyPsoriasisTeam Member

I’m so sorry that you are experiencing so much pain. I don’t understand why they would decide that you didn’t have it? Did they do xrays? blood work? I would find a new doctor, someone with experience with Psoriasis and PSA that knows what they’re talking about. On a side note, to inject a tiny bit of humor, perhaps the psychiatrist can help you with how to deal with crappy, insensitive doctors that won’t listen to you. 🤔🥴😉 Always trust your gut, you will always be your best advocate. I hope you find a new team and some relief.

June 18, 2023

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