Flares?
I see everyone talking about flares. I have PSA without psoriasis. My joints hurt all the time (especially back and hands); I'm fatigued all the time. There are no "flares" just consistent pain. I have tried pretty much all the drugs, without success. Currently using Talz, but I don't really think it helps. Has anyone else experienced this?
Betsy, dealing with insurance has been almost as frustrating as the disease itself! Why is it so hard to get a straight answer from them? I hope the Orencia is helpful for you. I have not tried the infusions yet, because insurance won't pay anything until I meet my high deductible. It is pretty much the only thing I haven't tried yet.
Betsy, UGGGG I hate insurance. So sorry you have to go through that. The disease is bad enough without having to deal with the insurance company telling you what you can and can't do!
Ellen, It is going on 5 months that healtcare (AdvocateAurora), my medical team (including Dermatologist, Rheumatologist, Neurologist, and GP), and my insurance (which unfortunately I paid $$ into, but am getting very little out of aka Medicare).
From Medicare (and Anthem).
I have learned there are hidden tiers to get more care such as PT, Accupunture, Light Therapy (if you have multiple of following: RA, High Blood Pressure, Diabetes, and Heart Disease); the other hidden tier is if you are behind in mortgage payments/housing costs, delinquent in utilities bills, on state or government assistance program, and having trouble/changing shopping habits due to inflation.
On the health tier, high blood pressure, heart disease and heart disease often go hand in hand. Why there is a discrimination between types of arthritis is beyond me and has never been answered though addressed.
On the financial tier, I am appalled that as an indiividual who contributed to Medicare and Social Security since a teen, I go last in line behind people who are not financially responsible.
My insurance program (same as spouse) has denied me physical therapy, light therapy, acupressure, acupuncture, diet modification program although he has received physical therapy (paraffin wax baths for arthritis in hands), therapeutic putty and strength blocks and light therapy for newly diagnosed psoriasis (he is in sick not poor category)
I have not tried Talz (my history of meds includes Humira, Enbrel, Cosentyx). I had best luck with Cosentyx. Medical and insurance are switching me to Orencia done through infusion center (3 times starter dose, then every month). I am a little scared because billing at healthcare hasn't given a good idea of what this will cost and medical team has not told me any side effects.
I have one grandchild who just came and another on the way; I want to be there for them as my parents were for my children.
Lynda3, Thank you for your kind words. I'm still trying to work full time and exercise on my days off. It's all getting harder though and I'm not sure how much longer I'll be able to do the things I want to do. That scares me a lot. I've always been a very active person.
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