I’m sorry that went down that way for you, @A MyPsoriasisTeam Member. As often as Psa and or PSA are referred to as “common” they still only affect a relatively small percentage of the population and because many MDs aren’t familiar with the onset of either that stretches the average time it takes to get a proper diagnosis out to somewhere near a year or more.

If you look up at the bottom right corner of the original question and see the little arrow pointing down, that will expand the comments and you may find other information that many also help as I’ve continued to link things onto this
question that have helped me to understand it better.

Even though I found a good doctor to undertake my care ( after having awful experiences with the doctors who diagnosed me ) I still need to ask my doctor to order specific tests I want to be able to follow my own health through the proof that the results provide. For example, I remember being told I was borderline anemic in the past when giving blood and as then, still eat no meat other than fish. So looking at iron levels is something I’m about to do, which interests me because iron ( and other ) deficiencies can affect our nails. Similarly, recent studies have shown Vitamin D levels are chronically low in those with autoimmune conditions and that supplementing with D3 and Omega3s can be incredibly beneficial to outcomes. I have an update on that linked up high in my profile Re Home testing for D that cites sources on this.

I’ve also seen great improvements after having changed the way I ate ( which was actually already very healthy to start with,
just a “ different kind of healthy ;)” and that’s linked in two updates in my profile including keyword Pagano. Now my aim is to lower systemic inflammation and in the last couple of years it’s really worked which I can see through my better health.

I’m learning that MDs, Dermatologists, Rheumatologists, even Gastroenterologists, rarely IF EVER order bloodwork to look at our nutritional markers: Vitamins and Minerals. WE have to WANT to know what’s going on inside ourselves and STEER doctors to provide us with answers.

Psoriasis and many other autoimmune conditions involve digestion. Some with psoriasis recognize symptoms of this, others do not. Due to what scientists are now calling Intestinal Permeability or Intestinal Barrier Tissue Issues, malabsorption makes it hard to get key nutrients, without which our overall health can slowly worsen, only to be blamed solely on Psoriasis, when we can actually manage the resulting deficiencies and alter our outcomes, improving overall health. I encourage everyone to ask their MD for Vitamin and Mineral Panel bloodwork. make certain to include your Bs, D, Homocysteine, Iron, MTHFR.. for a good start.

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A MyPsori...

The ILA-23 marker is a good test, but meaningless if you are negative.

“Arriving at a sustainable plan is the goal” is key. Seems as our diseases (both psoriasis and psoriatic disease) are gaining “popularity” more and more options are becoming available.

I know you’re anti-biologics, and don’t blame you. For me, when I started a biologic, I was a very high level executive at a major firm, working at my highest stress level, caring for a family, home, and a very active daughter. I took whatever was offered to keep me walking and moving.

Who’s to say that I haven’t stopped the progression? I know I sure did.

Yes, I’ve added a massive diet change, exercise, organic products in the home, eating nothing white (rice, potato, flour, salt, bread, sugar, etc.) lotions, potions, eastern meds, western meds, both therapies, medical cannabis, acupuncture, and now infrared therapy and soon to add cryotherapy.

INMO it’s everything that I do use and try, that keeps me moving daily, keeps PsA from overtaking my life, and keeps my lesions down to less that 5% of body coverage.

I feel our therapies are very individual. It’s not a one shot fix (YET) for any of us. Particularly for slowing the onset of worsening PSO or PsA.

I pray, read, research, stay on top of both my rheumatologist, Dermatologist, and medical doctor for any and every possible new regime to try. I am very optimistic that during my lifetime, I’ll get to see a cure for both of these horrible auto immune diseases.

I had all of these symptoms they describe from start to finish with the exception of uvet's. I was misdiagnosed for almost three years as having excema (rash) The placks under my nails were misdiagnosed as nail fungus. The pain in my thighs and feet and arms were mis diagnosed as bursitis. Joint payne I was told it was tendonitis. No tests were run other than blood tests. From primary doctor. After three years my doctor finally sent me to a dermatologist Because I had hard plaque underneath my nail beds and my nails were coming off the bed. The dermatologist clipped all of my nails toenails included and sent menial clippings to a lab for diagnosis. It came back soriatic arthritis and plaque psoriasis. She then referred me to a rheumatologist and I am now being treated three years later than I should have. I agree with the article and video you shared thank you.

If you’re concerned about Psoriasis or PSA, this surprising read from The Arthritis Foundation contradicts what 14 separate doctors have told me ( they were wrong ) because Food DOES affect your condition and progression. You CAN improve. Here’s what The Arthritis Foundation says:

“ The Microbiome, Diet and Psoriatic Arthritis

Jose Scher, MD, who directs New York University’s Psoriatic Arthritis Center and Microbiome Center for Rheumatology and Autoimmunity (MiCRA), is one of the nation’s leading experts on the microbiome. His 2013 study suggesting a link between the gut bacteria Prevotella copri and RA sparked an unprecedented interest in the role of gut and skin microbes in disease. That interest has led to thousands of studies and a growing understanding of how microbes and the immune system interact.

Because psoriasis develops five to seven years before psoriatic arthritis (PsA) in most patients, researchers like Dr. Scher have had a unique chance to study environmental factors that contribute to arthritis in people genetically prone to it. One common theme in a decade’s worth of animal and human studies: Disruption of a normal microbiome — dysbiosis — is found in most autoimmune rheumatic diseases, from PsA to RA and lupus. It also seems clear, at least in animal models, that too many inflammatory microbes or too few beneficial ones can trigger these diseases.

People with psoriasis and PsA not only have unhealthy gut and skin microbiomes, they also have low levels of protective short-chain fatty acids (SCFAs), which are produced when bacteria break down fiber. Scientists have known for at least a decade that SCFAs decrease inflammation in the gut via regulatory T-cells and, along with a high-fiber diet, improve inflammatory arthritis overall.

Dr. Scher said there’s no question that the microbiome is involved in psoriatic disease. The question is how to alter the microbiome to treat it. He described several options, ranging from fecal microbial transplants to the use of multiple or single strains of beneficial bacteria to changes in diet.

Just as Yasmine Belkaid found that a diet rich in unsaturated fatty acids improved psoriasis, others have shown that a diet high in fiber and unsaturated fat can reduce inflammation in synovial fluid.

Experts agree, achieving a healthy, balanced gut microbiome can prove difficult, but the benefits may be great — including reduced arthritis symptoms.“

There’s a booklet to help with this available at the bottom of the page where that text came from: https://www.arthritis.org/diseases/more-about/m...

Consider copying this, printing it and sharing with your doctor? Make sure to copy and include the link. If we don’t help continue their education, who will? ;)